What question did this study set out to answer?

This research aims to develop and validate a self-management efficacy questionnaire for patients with Fabry disease.

April 15, 2026Open Access

Development and validation of a self-management efficacy questionnaire for patients with Fabry disease in China

Key Points

This research aims to develop and validate a self-management efficacy questionnaire for patients with Fabry disease.
Created the F-SEQ questionnaire
Assessed reliability and validity in Chinese patients
Compared predictive associations with quality-of-life domains
F-SEQ showed strong reliability and validity
Demonstrated better predictive power for quality of life compared to conventional tools
Supports personalized intervention strategies for better patient outcomes

Abstract

The F-SEQ is a reliable and valid instrument for assessing self-management efficacy in patients with FD in the Chinese context. It also demonstrated stronger predictive associations with quality-of-life domains than conventional tools, supporting its use in informing personalized intervention strategies aimed at improving patient outcomes.

Connected Papers

Building similarity graph...

Analyzing shared references across papers

Discussion

Authors

Meiling Cao

Jiahui Zou

Mingyue Shi

Journals

Annals of Medicine

Actions

Institutions

China Medical University

First Hospital of China Medical University

References and Citations

Connected Papers

Building similarity graph...

Analyzing shared references across papers

Development and validation of a self-management efficacy questionnaire for patients with Fabry disease in China

Key Points

Abstract

Citation Network

Connected Papers

Discussion

Authors

Journals

Actions

Institutions

References and Citations

Citation Network

Connected Papers

Discussion

Cite this study