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March 3, 2026
Open Access
Patients as partners in a research advisory council role: describing the APERSU Patient Engagement Network
SA
S. Nizam Ahmed
MB
Molly Bruce
DD
D'Arcy Duquette
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Key Points
The initiative enhances clinical outcomes through active patient engagement in research advisory roles.
Key metrics include improved stakeholder input and collaboration across diverse community networks.
This observational analysis showcases how patient advisory councils can actively shape research agendas.
Successful patient engagement initiatives may enable better alignment of research priorities with community needs.
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Ahmed et al. (Sat,) studied this question.
synapsesocial.com/papers/69a75f07c6e9836116a2a1ff
https://doi.org/https://doi.org/10.1186/s41687-026-01001-8
Patienten als Partner in der Rolle eines Forschungsberatungsgremiums: Beschreibung des APERSU Patient Engagement Netzwerks | Synapse