“Hope is so fragile”: parent perspectives on the care of children with single-ventricle heart disease

Key Points

• The aim is to explore parent perspectives on care for children with single-ventricle heart disease, focusing on integrated care models.
• Qualitative interviews with parents of children diagnosed with single-ventricle heart disease
• Analysis of parents' insights regarding care models
• Discussion of medical and psychosocial service integration
• Parents emphasized the significance of family-centered care models.
• Integrated care models were noted to improve overall child development outcomes.
• Parents discussed the importance of psychosocial support for both children and families.

Abstract