Post‐Transplant Quality of Life in Pediatric Heart Transplant Recipients and Their Parents: A Qualitative Analysis With Implications for Care

Key Points

• To explore the quality of life among pediatric heart transplant recipients and their parents, focusing on their mental health and support needs.
• Conducted qualitative analysis of experiences from heart transplant recipients and their parents.
• Identified communication preferences related to care and support.
• Gathered insights on mental health challenges such as anxiety, PTSD, and depression.
• Revealed significant mental health struggles among heart transplant recipients and their families.
• Emphasized the need for communication preferences to inform care delivery.
• Highlighted the importance of proximity to home for continued care.

Abstract