Addressing the unmet challenge of pain in rare bone diseases: new insights from the RUDY UK registry

Key Points

• Pain significantly impacts patients with rare bone diseases, influencing their quality of life.
• Over 300 participants reported varying levels of pain, with specific biomarkers linked to severity.
• Analysis of data from the RUDY UK registry provides insights into pain management strategies.
• Findings may enable better clinical interventions for managing pain in these patients.