March 3, 2026Open Access

The journey to diagnosis for patients with CIDP: results from a real-world international survey

CAClémence Arvin-BerodArgenx (Belgium)FBFebe BrackxDepartment of Health Services LVLucas Van de VeireDepartment of Health Services

Key Points

The median time to diagnosis for CIDP patients is 7 months, with over a third experiencing a misdiagnosis.
Patients exhibiting mild symptoms and variants of CIDP are more likely to face longer diagnostic delays.
Misdiagnosis is significantly linked to extended time taken for accurate CIDP diagnosis, complicating the treatment process.
Further research is crucial to understand the causes of diagnostic delays and the implications for treatment outcomes.

Abstract

Median time to diagnosis for CIDP patients was 7 months; over a third had at some point been misdiagnosed. Mild symptoms, having variant CIDP and having been misdiagnosed were associated with longer time to diagnosis. Further research into the causes of diagnostic delay and the impact of late diagnosis and treatment is needed.

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