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March 5, 20260 citations

"Nothing for Us Without Us": A Mixed Methods Study Examining the Acceptability, Feasibility, and Impact of Involving Guardians of Children With Acute Lymphoblastic Leukemia in Tanzania as Public Contributors.

FCFaraja Chiwanga PTPius M Temba DRDavid A Richards

Key Points

To evaluate the acceptability, feasibility, and impact of involving guardians of children with acute lymphoblastic leukemia in research.
Mixed methods approach
Involvement of guardians as public contributors
Qualitative and quantitative assessments
Involvement of guardians was found to be acceptable and feasible
GAB members reported positive impacts on their engagement in research

Abstract

Findings suggest GAB members' contribution was acceptable and feasible, and had an impact on both the research and GAB members themselves. Findings can inform how to meaningfully involve public contributors in LMICs.

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