From patients to partners: Evaluating a co-designed website for congenital hypogonadotropic hypogonadism

Key Points

• This research aims to evaluate the effectiveness of a co-designed website aimed at empowering patients with congenital hypogonadotropic hypogonadism (CHH).
• Co-design process involving patients to develop a virtual patient empowerment toolkit
• Creation of a website focusing on patient priorities
• Evaluation of the website's understandability and actionability
• The website produced is understandable and actionable for patients
• It responds directly to patient priorities
• Demonstrates the potential of co-creation in developing resources for rare diseases