Secondary Use of Health Data for Training Generative AI Models Risks and Interplay between the EHDS and the AI Act

Key Points

• This research aims to investigate the risks of secondary health data use for training generative AI models and its regulatory implications.
• Presented at the EHDS 2026 Conference
• Reviewed relevant literature on health data uses
• Analyzed regulatory frameworks including the EHDS and AI Act
• Identified significant risks associated with secondary use of health data.
• Outlined challenges in aligning EHDS regulations with the AI Act.
• Highlighted potential ethical and privacy concerns in AI model training.