Care and commitment as catalysts for independence: the impact of hemophilia society support programs through ripple effect mapping

Key Points

• The aim is to understand how support programs from hemophilia societies enhance autonomy and community relationships among individuals.
• Utilized ripple effect mapping to assess impacts of support programs.
• Analyzed the deeper consequences of patient organization support.
• Evaluated both visible and subtle benefits from these programs.
• Support programs contributed to increased autonomy and resilience.
• Participants reported stronger community relationships due to the programs.
• Traditional evaluation methods may miss important, nuanced benefits.