A cost of illness model to estimate the annual societal costs of X-linked retinitis pigmentosa (XLRP) in the United Kingdom (UK)

Key Points

• The research aims to estimate the annual societal costs of X-linked retinitis pigmentosa in the UK, emphasizing the economic burden on patients and caregivers.
• Developed a cost of illness model focusing on societal costs
• Assessed the impact of disease severity on costs
• Evaluated opportunity costs for caregivers and productivity losses for patients
• Found that higher disease severity correlates with increased societal costs
• Identified that caregiver opportunity costs are significant contributors to total costs
• Confirmed that health care resource use minimally affects overall economic burden