Introducing a parent-centred composite disease activity score for remote monitoring in juvenile dermatomyositis

Key Points

• The research aimed to assess the feasibility and measurement properties of the ParJDMAI for remote monitoring in juvenile dermatomyositis.
• Developed the ParJDMAI as a parent-centred composite disease activity score.
• Utilized digital technologies for completion of the score.
• Evaluated its potential as a surrogate for physicians' evaluations.
• The ParJDMAI was found feasible for use.
• It demonstrated good measurement properties.
• It may serve as a reliable alternative to physicians' assessments.