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August 1, 2025Australian Journal of Rural Health3 citationsOpen Access

‘It's Putting All the Burden on the Patient’: A Qualitative Study of Health Literacy and Shared Decision‐Making in Rural Australian Communities

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HGHeidi J. GrayTKTiana KittosDMDanielle Marie Muscat

Key Points

  • Health literacy challenges are amplified in rural communities, affecting healthcare access and engagement.
  • Participants highlighted barriers such as a transient healthcare workforce and pressure on health systems impacting decision-making.
  • The research used semi-structured interviews and Framework Analysis to highlight key themes from 25 rural adults' experiences.
  • Leveraging unique community strengths can support health literacy and improve healthcare interventions in these areas.

Abstract

ABSTRACT Objectives Rural communities in Australia face significant barriers to health. Grounded in phenomenology as a research methodology, this study aimed to explore health literacy and shared decision‐making in rural areas from the perspective of community members. Design Semi‐structured interview study, with data analysed using Framework Analysis. Participants Twenty‐five adults living in rural communities. Setting Interviews were conducted remotely, spanning seven Australian states and territories. Results Three main themes were generated from the data (comprising 10 sub‐themes): (a) service access, (b) healthcare engagement, trust and decision making, (c) ‘a different approach for us’: leveraging community strengths. Demands on health literacy in rural settings were amplified, with additional health literacy requirements related to accessing and using healthcare services, navigating the healthcare system and understanding how to take appropriate health action in a rural setting. Participants reflected on the transient nature of the healthcare workforce in rural areas and experiences of pressurised health systems as barriers to service access and shared decision‐making. Our analysis also identified a complex interplay between the social determinants of health and health literacy in rural contexts; challenges in healthcare access and navigation were discussed in the context of socioeconomic status, education, literacy and language. However, we also identified rural community strengths which could be leveraged to support health literacy action and responsiveness. Conclusion By addressing unique health literacy challenges and leveraging the strengths of rural communities, healthcare policies and interventions can better meet the needs of these populations.

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Cite This Study

Gray et al. (2025) studied this question.

synapsesocial.com/papers/68af53ffad7bf08b1eadaa17https://doi.org/10.1111/ajr.70084
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