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May 20, 2026Journal of Aging & Social Policy0 citationsOpen Access

Supporting and Representing Older Adults in Healthcare and Financial Matters: Experiences of Informal Caregivers in the Netherlands with Decision-Making and Legal Measures

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RNR. NieuwboerTPT.C. PeetoomCBC.C.J.H. Bijleveld

Key Points

  • This research aims to explore the experiences of informal caregivers in supporting older adults with healthcare and financial decision-making.
  • Qualitative interviews conducted with informal caregivers in the Netherlands
  • Analysis of decision-making processes in medical and financial contexts
  • Examination of the role of legal measures like adult guardianship
  • Legal measures like adult guardianship provide clarity but face criticism for substituted decision-making practices
  • Informal caregivers report inconsistencies in recognizing voluntary arrangements for financial matters
  • Findings suggest a need for legal frameworks that empower caregivers while protecting older adults' well-being.

Abstract

measures generally suffice for medical decisions, financial matters often require voluntary measures, which appear inconsistently recognized in practice. When voluntary arrangements are not feasible, adult guardianship measures may offer legal clarity. Although some international rights bodies call for the abolition of substituted decision-making regimes like adult guardianship, this study highlights their practicality in certain contexts. The findings call for legal and policy frameworks that both empower informal caregivers and safeguard the well-being of older adults.

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Cite This Study

Nieuwboer et al. (2026) studied this question.

synapsesocial.com/papers/6a0d4ec0f03e14405aa99e34https://doi.org/10.1080/08959420.2026.2673828
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