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April 14, 2026Death Studies0 citationsOpen Access

Homecare workers’ experiences of providing transpersonal palliative care: A qualitative, arts‑based explorative study

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LTLaura TolboomUNUlla NäppäLKLisbeth Kristiansen

Key Points

  • This research aims to explore homecare workers' experiences in delivering transpersonal palliative care amidst various challenges.
  • Conducted a qualitative, arts-based study combining painting and storytelling.
  • Gathered narratives from 14 homecare workers in Sweden in 2025.
  • Applied reflexive thematic analysis alongside critical visual methodology.
  • Identified an overarching theme of Continuous Flow of Embodied Compassion.
  • Developed three subthemes: Emotional Navigation, Existential Depth, and Shifting Identities.
  • Revealed challenges in providing holistic care due to limited self-care opportunities and institutional support.

Abstract

The global population is rapidly aging, increasing the demand for palliative home care, which is largely provided by homecare workers, operating with minimal resources and significant personal involvement. Task-oriented caring limit opportunities for ethical, holistic, and sustainable care. We explored how homecare workers experience transpersonal palliative care and how they perceive its depth, intensity, and complexity. Using an arts‑based qualitative design that combined painting and storytelling, we gathered narratives from 14 homecare workers in Sweden during the spring of 2025. We analyzed the data using Reflexive Thematic Analysis, complemented by critical visual methodology. We constructed one overarching theme, Continuous Flow of Embodied Compassion, and three interrelated subthemes describing Emotional Navigation, Existential Depth, and Shifting Identities. While homecare workers strove to provide holistic palliative care, limited self‑care opportunities and insufficient institutional support challenged the full realization of transpersonal caring in everyday practice.

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Cite This Study

Tolboom et al. (2026) studied this question.

synapsesocial.com/papers/69ddd8eee195c95cdefd67bchttps://doi.org/10.1080/07481187.2026.2649289
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  4. 4Person-Centred Palliative Home Care From a Patient and Family Carer Perspective – A Qualitative Interpretive Meta Synthesis2026
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