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February 12, 2026Neurology0 citationsOpen Access

Expert Consensus Approach to Developing Inpatient Common Data Elements for Neonatal Encephalopathy Research

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EPEric S. PeeplesUMUlrike MietzschEMEleanor J. Molloy

Key Points

  • The aim is to create standardized common data elements for neonatal encephalopathy to enhance research quality.
  • Expert consensus approach to identify key data elements.
  • Focus on clinical and research definitions of HIE.
  • Emphasis on family-centered follow-up data post-discharge.
  • Establishment of foundational common data elements for NE/HIE research.
  • Identification of gaps in current definitions that require addressing in future studies.

Abstract

The CDEs are the first of several important steps to further standardize research and reporting of NE/HIE investigations to perform more efficient and powerful clinical research in the field moving forward. Future studies need to establish a clinical and research definition of HIE and develop CDEs for collecting long-term, family-centered follow-up data postdischarge.

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Cite This Study

Peeples et al. (2026) studied this question.

synapsesocial.com/papers/698d6d445be6419ac0d52317https://doi.org/10.1212/wnl.0000000000214658
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