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February 19, 2026The Family Journal0 citations

From Child-Focused to Family-Centered: Caregiver Perspectives on Success in Autism Treatment

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MBMichelle BefiVBVincent BemmelICIan Cook

Key Points

  • This study aims to understand caregiver perspectives on success in autism treatment and the barriers they face.
  • Qualitative analysis of intake responses from 81 caregivers of autistic children.
  • Participants were categorized based on three developmental stages: <6, 6–11, 12–17 years.
  • Thematic analysis to identify core themes in caregiver perspectives.
  • Four core themes organized around understanding the child and empowering the family system emerged.
  • Caregivers highlighted goals related to emotional regulation, family wellbeing, and systemic navigation.
  • Findings indicate that caregiver perspectives challenge traditional child-only treatment models.

Abstract

Autism treatment in the United States often centers on child behavior change, with caregivers viewed as adjunct rather than central. In contrast, this qualitative study examines caregiver perspectives at treatment entry, exploring how they conceptualize success and perceive barriers. We analyzed intake responses from 81 caregivers of autistic children across three developmental stages (<6, 6–11, 12–17 years) using a structured thematic analysis. Four core themes emerged, organized into two overarching themes: Understanding and Supporting the Autistic Child (Layers of Self; Help Them Thrive) and Empowering the Family System (We’re in This Too; Healing the System). Caregivers articulated layered goals spanning emotional regulation, social identity, autonomy, caregiving capacity, family wellbeing, and systemic navigation. Their perspectives challenge traditional child-only models by highlighting the reciprocity between child outcomes and family functioning. Findings underscore the suitability of Marriage and Family Therapists (MFTs) to lead holistic, family-centered autism care, bridging child and family priorities, tailoring support to caregiver readiness, and navigating systemic barriers. By centering caregiver voices within a systemic framework, this study offers a pathway toward more relationally responsive and sustainable autism interventions.

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Cite This Study

Befi et al. (2026) studied this question.

synapsesocial.com/papers/6996a7a5ecb39a600b3ed8aahttps://doi.org/10.1177/10664807261420133
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1Clinicians' experiences and perceptions of family therapy in the context of autism2024 · 1 citations
  2. 2Between neuroaffirmation and access: Parents’ experiences of autism caregiving in England2026
  3. 3Family Resilience Status and Characteristics in Families of Children with Autism: A Mixed-Methods Study2025
  4. 4‘She isn’t allowed to get upset about that’: Parenting narratives, caregiving behaviour and child attachment in families of autistic children in middle childhood2026
  5. 5Factors Impacting Treatment Decisions in Caregivers of Autistic Children2026