Education and participation in children and adolescents with Duchenne muscular dystrophy in Switzerland

Key Points

• Participation in education is significantly impacted by the condition, affecting social and academic development.
• Key findings indicate that 70% of children with Duchenne muscular dystrophy face challenges in school full-time attendance.
• Analysis of caregiver interviews explored barriers and facilitators to education and participation in rehabilitation.
• Improved support services may enhance overall outcomes, indicating a need for community and systemic changes.