Data collection was completed in April 2025. Findings from this cohort will elucidate important predictors of self-management and engagement in recommended annual LTFU and inform the design of interventions to reduce disengagement in LTFU.
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Sara King-Dowling
Kelsey Woodard
Haley L. Faust
University of Pennsylvania
The Ohio State University
Children's Hospital of Philadelphia
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King-Dowling et al. (Sat,) studied this question.
www.synapsesocial.com/papers/69a76139c6e9836116a2eefa — DOI: https://doi.org/10.64898/2026.02.11.26346092