“I am struggling to find an explicit task”—a midterm evaluation of patient research partner involvement in HIPPOCRATES translational research

Objectives: The HIPPOCRATES project is a 5-year, international research partnership dedicated to studying and treating psoriatic disease.Integrating Patient Research Partners (PRPs) into large scientific groups, particularly those heavily focused on preclinical or laboratory-based science, is challenging.This paper details a midterm evaluation of how effectively PRPs have been engaged in the HIPPOCRATES project.Methods: Our evaluation used a mixed-method approach comprising 7 dedicated reflective PRP meetings, 2 midterm surveys among PRPs and researchers, a modified World Caf e discussion, and 5 structured dialogue meetings.We used descriptive statistics and pragmatic constant comparative analysis.