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April 8, 2026Health ExpectationsOpen Access

Training Adolescents and Young Adults to be Partners in Research: Co‐Creating the Young Patients' Autoimmune Research and Empowerment Alliance

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Authors

AKAnya R. KhuranaKAKaye AndersonKCKristine Carandang

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Overview

This project trains young patients to co-create research activities, highlighting their empowerment and involvement.

Key Points

  • The aim is to empower adolescents and young adults with autoimmune conditions to actively participate in research.
  • Young patients co-designed research activities and evaluations
  • Project team and council members are all patients with autoimmune conditions
  • Activities were collaboratively created by young patients
  • Active involvement of young patients led to tailored research activities
  • Co-authorship of the manuscript by young patients
  • Stronger patient-researcher partnerships were developed

Cite This Study

Khurana et al. (2026) studied this question.

synapsesocial.com/papers/69d5f13674eaea4b11a7ac3bhttps://doi.org/10.1111/hex.70642
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