What question did this study set out to answer?

To assess how Parkinson's disease affects the quality of life of family members and partners.

April 10, 2026Open Access

Beyond the burden: Measuring the quality of life impact of Parkinson's on family members/partners using FROM-16

Key Points

To assess how Parkinson's disease affects the quality of life of family members and partners.
Utilized the FROM-16 tool to measure family impact.
Conducted assessments in various settings.
Analyzed the well-being of family members/partners of individuals with Parkinson's.
Identified significant negative impacts on family members' quality of life.
Highlighted the necessity for tailored support to improve family well-being.
Suggested that monitoring family impact could enhance care for individuals with Parkinson's.

Abstract

A person's PD greatly impacts the QoL of their family members/partners. Their well-being has important implications for supporting PwP and nursing home placement, hence the need to measure this impact to provide tailored support to these family members/partners. FROM-16 could be used to measure the family impact of PD in the routine practice of different settings.

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Discussion

Authors

Rubina Shah

S. Salek

Faraz M Ali

Journals

Journal of Parkinson s Disease

Actions

Institutions

Cardiff University

University of the Witwatersrand

University of Hertfordshire

References and Citations

Connected Papers

Building similarity graph...

Analyzing shared references across papers

Beyond the burden: Measuring the quality of life impact of Parkinson's on family members/partners using FROM-16

Key Points

Abstract

Citation Network

Connected Papers

Discussion

Authors

Journals

Actions

Institutions

References and Citations

Citation Network

Connected Papers

Discussion

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