Patient and Practitioner workshops for an Intellectual Disabilities and Epilepsy Neuropsychiatric Genetic Research Database Register: Ethical dilemmas for study design

person-centred approach.A specific "hard to reach" population of PwID and Epilepsy were also discussed (theme 5.) ConclusionThemes build on previous work addressing the need for flexible and nuanced approaches to ensure research with PwID is communicated appropriately and delivered in inclusive, ethical ways.These approaches raise challenges and ethical dilemma for researchers defining study delivery protocols and processes that fit NHS Research Ethics Committee (REC) application and approval processes.