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April 30, 2026Lara D. Veeken

P194 Polymyalgia rheumatica: what’s keeping the system from finding a sustainable solution?

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Authors

SMSarah L MackieLCLucas CoutinPGPayal Ganguly

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Overview

Qualitative analysis identifies barriers to PMR diagnosis and treatment in older populations, suggesting improvements in care systems.

Key Points

  • The aim is to uncover the challenges in diagnosing and treating polymyalgia rheumatica, particularly in the North of England.
  • Engaged with patients, clinicians, and researchers through multi-stakeholder events.
  • Created a video highlighting patient lived experiences and conducted interviews.
  • Performed qualitative thematic analysis to identify system-level challenges.
  • Patients described PMR as isolating, with low public awareness affecting care.
  • Contradictory messages from guidelines differ from patient experiences, highlighting significant disconnects.
  • The lack of alternatives to glucocorticoids perpetuates barriers in patient-clinician interactions.

Cite This Study

Mackie et al. (2026) studied this question.

synapsesocial.com/papers/69f2f1be1e5f7920c63875edhttps://doi.org/10.1093/rheumatology/keag121.224
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1AB1308 DEVELOPMENT OF A NOVEL INTELLIGENT MONITORING PLATFORM FOR SUPPORTING COMMUNITY-BASED PRACTITIONERS CARING FOR PATIENTS LIVING WITH POLYMYALGIA RHEUMATICA - PMR IMPROVE2024
  2. 2POS1426 OUTCOMES FROM A REAL-WORLD DEDICATED FAST-TRACK POLYMYALGIA RHEUMATICA CLINIC2024
  3. 3POS1429 IMMUNE CHECKPOINT INHIBITOR-MEDIATED POLYMYALGIA RHEUMATICA VERSUS PRIMARY POLYMYALGIA RHEUMATICA: COMPARISON OF DISEASE CHARACTERISTICS AND TREATMENT REQUIREMENT2024
  4. 4P182 Exercise and activity in polymyalgia rheumatica: co-creating an education resource acceptable to patients and health professionals2024
  5. 5P041 Health-related quality of life in patients receiving glucocorticoids for a rheumatic disease and associated factors : a cross-sectional study2024