Osseointegration and self-management decision making

PURPOSE: This study explores how individuals living with limb osseointegration (OI) make decisions about their self-management, including how they seek, evaluate, and apply health information. MATERIALS AND METHODS: Zoom. Transcripts were analyzed using constant comparative methods to identify themes and develop a theory of self-management decision-making. RESULTS: Participants described a multifaceted decision-making process across four stages of their OI journey: deciding to undergo OI, managing early post-operative care, addressing complications, and establishing daily routines. The process involved five steps: seeking information, deciding what to use, trying it out, validating its effectiveness, and sharing with peers. Online communities played a significant role in information exchange, though concerns about misinformation were noted. Participants demonstrated high levels of self-advocacy and critical health literacy, often compensating for limited provider knowledge. CONCLUSIONS: Findings highlight the need for decision aids, tailored self-management programs, and healthcare provider engagement with online communities. Supporting critical health literacy and peer networks can enhance rehabilitation outcomes for individuals with OI.