Patient engagement for quality improvement and knowledge translation in paediatric orthopaedic care – a patient partner led initiative

Abstract Background In healthcare, a shift towards patient-centric models has gained traction, emphasizing patient empowerment. This is exemplified by initiatives such as the Canadian Institutes of Health Research (CIHR) Strategy for Patient-Oriented Research (SPOR), which aims to foster a more sustainable and equitable healthcare system, as well as the increased support provided by the Patient-Centered Outcomes Research Institute (PCORI), which supports research that provides useful and reliable healthcare information to users. Despite progress in various healthcare domains, patient-engagement initiatives remain underexplored in paediatric orthopaedic care, highlighting a gap in tailored engagement strategies for this population. Methods This project took place within the department of orthopaedics at a provincial tertiary care children’s hospital. Utilizing patient-partner led focus groups as a collaborative approach, we implemented engagement strategies guided by SPOR principles and informed by patient and caregiver feedback. Small focus groups facilitated meaningful discussions and allowed participants to contribute valuable insights into research, treatment, and knowledge translation (KT). Results The focus groups identified action items to enhance patient engagement and research collaboration. Initiatives included the development of patient and family directories, patient resources, patient partnerships, patient spotlights on Instagram, and clinic gathering rooms. Co-creating KT materials ensured relevance and accessibility, fostering cooperation between patients, caregivers, and healthcare professionals. Conclusions This initiative marks a shift towards patient-centric paediatric orthopaedic care, emphasizing inclusivity, support, and collaboration. Patient-partners played a pivotal role in the success of the project, ensuring patient perspectives were central to the planning and execution of initiatives.