Family perspective: raising a child with NEC and the need for multidisciplinary care | Synapse
May 31, 2026Open Access
Family perspective: raising a child with NEC and the need for multidisciplinary care
Key Points
This study aims to understand the family perspective on raising a child with necrotizing enterocolitis (NEC) and the importance of multidisciplinary care.
Qualitative interviews conducted with families impacted by NEC.
Analysis of experiences regarding the clinical environment and support from multidisciplinary teams.
Families reported feeling overwhelmed by the clinical environment, characterized by constant monitoring and medical equipment.
Highlighted the necessity for better communication and emotional support from the clinical team.
Abstract
The steady pulse of monitors and pumps fills the room while I hear the clinical team assembling out in the hall.