From “Gatekeeping” to Supported Autonomy: Rethinking Mandatory Companions in Predictive Testing

Key Points

• Shifting from gatekeeping to supported autonomy enhances the role of individuals in predictive testing discussions.
• Supported autonomy emphasizes informed decision-making over mandatory companion intervention in predictive contexts.
• The analysis suggests potential ethical improvements by redefining the relationship between companions and individuals in predictive testing.
• Highlights a crucial debate in genetic testing regarding the balance of support and autonomy for individuals.

Abstract