The project was endorsed by our Consumer and Community Involvement Group (CCIG), a research advisory board consisting of people with lived experience of Parkinson's Disease and dementia, including those caring for PwPD. The CCIG identified initial need for the research project, were involved in refining the focus group topic guide and refining the recommendations for the national survey.
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Deepa Sriram
Dana Pourzinal
Daniel X. Bailey
Health Expectations
The University of Queensland
Queensland University of Technology
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Sriram et al. (Sun,) studied this question.
www.synapsesocial.com/papers/69ba42cf4e9516ffd37a373d — DOI: https://doi.org/10.1111/hex.70530