Facilitators and barriers in obtaining informed consent for neonatal research: a scoping review

Key Points

• The aim is to explore factors that facilitate and hinder informed consent in neonatal research.
• Performed a scoping review analyzing existing literature on informed consent in neonatal research.
• Identified and categorized facilitators and barriers reported by parents.
• Examined motivations such as perceived benefits and altruism against fears and perceived risks.
• Parents frequently express a desire to contribute to science as a motivator for consent.
• Common barriers include concerns about risks and the perceived burden of participation.

Abstract