Beyond the Physical Demands: Loneliness and Social Isolation Among Female Spousal Caregivers of Persons with Alzheimer’s Disease

Background: Adjusting to Alzheimer’s disease diagnosis is a complex process. Caregivers tend to experience feelings of loneliness and isolation, which in turn may have adverse effects on their well-being. The purpose of this study was to explore and describe the perspectives of female older adult caregivers of individuals with AD concerning the social isolation and loneliness. Methods: The study uses a mixed methods design (N = 48), combining qualitative and quantitative research components to provide a more comprehensive understanding of the phenomenon. Results: Based on the analysis, three main themes were derived: “social isolation due to caregiving responsibilities”, “changes in social circle” and “balancing caregiving and social connection”. There were significant negative associations between loneliness and depression. Conclusion: While the detrimental effects of caregiving on psychological and physical health are well-documented, further research is needed to fully understand the multifaceted nature of the caregiving experience, particularly regarding loneliness and social isolation. This study addresses this gap by exploring the often-neglected aspect of loneliness among caregivers. The findings provide valuable insights for psychologists and healthcare professionals, enhancing their understanding of the challenges and needs of this population. Keywords: Alzheimer’s disease, caregivers, loneliness